죽어가는 환아를 지켜보면서, I was with him and his family at the final moment of his life.

죽어가는 환아를 지켜보면서, I was with him and his family at the final moment of his life.

죽어가는 환아를 지켜보면서

• 소아과 의사로 소아 환아들을 진료 할 때 의사도 부모도 할 수 있는 이 세상 모든 치료를 다 했어도 할 수 없이 사망하는 소아 환자가 몇 명 있었다.
• 3,4십 여 년 동안 소아과 진료를 하는 동안 가장 어려웠던 처지가 바로 이런 때였다.
• 최선을 다해 치료를 했어도 사랑하는 환아 수십만 명 중 특히 3명의 환아 사망이 머리에 자주 떠오른다.
• 가장 유명하고 좋다고 하는 보스톤 하버드 의과 대학 소아과 병원에서도 고칠 수 없다고 집에서 이 세상을 편안하게 떠나게 하라는 진단 받고 그의 집 침대에서 새벽 2시에 부모가 지켜보는 중 죽은 4세 백혈병 여 환아.
• 동네 병원 소아 병실 침실에서 부모 형제 앞에서 죽어가는 12세 말기 낭성 섬유증 남 환아를 임종했던 일.
• 서울 시립병원 소아 병실에서 7살 말기 신부전증으로 앓다가 죽어가는 남아를 그의 엄마와 지켜봤던 시간은 몇 십 년이 지났지만 아직도 기억에 더 생생하다.
• 소아가 이 세상을 떠나는 마지막을 짧은 시간 동안 부모와 같이 지키고 있었던 일.
• 죽는 순간까지 말없이 부모와 가족을 위로 했던 짧은 시간은 귀한 인술 중 귀한 인술이 아닌가 생각해 본다
• 부모를 꼭 허그해주고 말 없이 떠났던 그 날.
• Update :  사랑하는 어린 자녀가 갑자가 또는 장기간 앓다가 죽었을 때는 부모 형제 자매 전가족이 참을 수 없는 고통을 당하게 된다. 슬픔에 장기간 전 가족은 가족 공동 생활 체계가 무너지기도 한다. 아이의 죽음은 부모는 물론 전 자매 형제들에게 장기간 육체적 정신적으로  영향을 준다. 그로 인해 심지어는 죽기도 한다. 그런 전가족들의  아픔을 덜어주는 일  에 전력을 다 해야 한다. 때로는 전력을 다해 살려주지 못 했다고 한 없이 슬프게 산다.Pediatrics.11/2021.

Watching a dying child, I was with him and his family at the final moment of his life.

Watching a dying child

• As a pediatrician, when treating pediatric patients, there were a few pediatric patients who had to die despite all the treatments that doctors and parents could do in this world.

• This was the most difficult situation during my 3 or 40 years of pediatric care.

• Even with the best treatment, the death of 3 children out of hundreds of thousands of loved ones often comes to mind.

• A 4-year-old girl with leukemia, diagnosed with pediatrics at Boston Harvard Medical School, which is said to be the most famous and best, told her to leave the world comfortably at home and died while her parents watched her in his bed at 2 am.

• The death of a 12-year-old male with cystic fibrosis who died in front of her parents and siblings in the bedroom of a pediatric ward at a local hospital.

• It has been several decades since I watched a boy with his mother who was dying from renal failure at the age of 7 in the pediatric ward of the Seoul City Hospital, but it is still vivid in my memory.

• For a short period of time the child was staying with his parents at the end of his death.

• I think that the brief time of silently comforting parents and family until the moment of death is one of the most precious ninjutsu.

• The day I hugged my parents and left without a word.

Update: When a loved one dies suddenly or after a long illness, the entire family of parents, siblings, and family suffer unbearably. For a long period of time in grief, the whole family’s communal system of family life may collapse. The death of a child has long-term physical and psychological effects on the parents as well as the siblings. It even kills them. They felt they must do their best to a dead child, and then they have been suffering from the pain in such an entire family. Sometimes they live infinitely sadly that They couldn’t save him with all their might. Pediatrics.11/2021.

출처 및 참조 문헌 Sources and references

• NelsonTextbook of Pediatrics 22ND Ed
• The Harriet Lane Handbook 22ND Ed
• Growth and development of the children
• Red Book 32^nd Ed 2021-2024
• Neonatal Resuscitation, American Academy of Pediatrics

• Supporting Transition to the Bereaved Community After the Death of a Child,  The J11/2021EJM
• Oral Health The Pediatric Clinics of North America, Stuart D.Josell
• Pediatric Oral Health Stuart Jose
• Ann L. Griffen, DDS, MS
• Atlas Pediatric Physical Diagnosis Frank A Oski

• Emergency Pediatrics A Guide to Ambulatory Care, Roger M. Barkin, Peter Rosen
• Gray’s Anatomy

• 제19권 소아청소년 안과 질환 참조문헌 및 출처
• Habilitation of The handicapped Child, The Pediatric Clinics of North America, Robert H Haslam, MD.,
• Pediatric Ophthalmology, The Pediatric Clinics of North America, Leonard B. Nelson, M.D.
• Pediatric Ophthalmology, The Pediatric Clinics of North America, Lois J. Martyn, M.D.
• Pediatric Ophthalmology, Edited by Robison D. Harley, M.D.
• The Pediatric Clinics of North America, David Tunkel, MD., Kenneth MD Grundfast, MD

• 제22권 아들 딸 이렇게 키우세요 참조문헌 및 출처
• Ambulatory Pediatrics, Green and Haggerty, Saunders
• Introduction to Clinical Pediatrics, Smith and Marshall, W.B. Saunders Co
• School Health: A Guide For Health Professionals, American Academy of Pediatrics
• Goodman and Gilman’s The pharmacological  Basis of Therapeutics
• Bible
• How to really love your child Ross Campbell
• Good Behavior Stephen W. Garber, Ph.D. and other
• Kids Who follow, Kids who don’t
• Loving Each Other Leo F Buscaglia, Ph, D.
• 잠정한 자녀 사랑 나비게이터
• 10대 아들 딸 이렇게 사랑해 키워라 이상원 역

Copyright ⓒ 2014 John Sangwon Lee, MD., FAAP

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“The information contained in this publication should not be used as a substitute for the medical care and advice of your doctor. There may be variations in treatment that your doctor may recommend based on individual facts and circumstances.

“Parental education is the best medicine.